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Disability rights movement

The disability rights movement is a global[1][2][3] social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.

Not to be confused with Disability studies.

It is made up of organizations of disability activists, also known as disability advocates, around the world working together with similar goals and demands, such as: accessibility and safety in architecture, transportation, and the physical environment; equal opportunities in independent living, employment equity, education, and housing; and freedom from discrimination, abuse, neglect, and from other rights violations.[4] Disability activists are working to break institutional, physical, and societal barriers that prevent people with disabilities from living their lives like other citizens.[4][5]


Disability rights is complex because there are multiple ways in which a person with a disability can have their rights violated in different socio-political, cultural, and legal contexts. For example, a common barrier that individuals with disabilities face deals with employment. Specifically, employers are often unwilling or unable to provide the necessary accommodations to enable individuals with disabilities to effectively carry out their job functions.[6]

History[edit]

United States[edit]

American disability rights have evolved significantly over the past century. Before the disability rights movement, President Franklin D. Roosevelt's refusal to be publicized in a position of vulnerability demonstrated and symbolized the existing stigma surrounding disabilities.[7] While campaigning, giving speeches, or acting as a public figure, he hid his disability. This perpetuated the ideology that "disability equates to weakness".[8]


Disability in the United States was viewed as a personal issue, and not many political or governmental organizations existed to support individuals in these groups. In the 1950s, there was a transition to volunteerism and parent-oriented organizations, such as the March of Dimes.[9] While this was the beginning of activism and seeking support for these groups, children with disabilities were largely hidden by their parents out of fear of forced rehabilitation.[8] When the civil rights movement took off in the 1960s, disability advocates joined it and the women's rights movements in order to promote equal treatment and challenge stereotypes. It was at this time that disability rights advocacy began to have a cross-disability focus. People with different kinds of disabilities (physical and mental disabilities, along with visual and hearing disabilities) and different essential needs came together to fight for a common cause.


It was not until 1990 that the Americans with Disabilities Act (ADA) was passed, legally prohibiting discrimination on account of disability, and mandating disability access in all buildings and public areas. The ADA is historically significant in that it defined the meaning of reasonable accommodation in order to protect employees and employers.[10] Today, disability rights advocates continue protecting those who are discriminated against, including work towards issues like law enforcement and treatment of people with disabilities.

United Nations[edit]

On a global scale, the United Nations has established the Convention on the Rights of Persons with Disabilities,[11] specifically discussing indigenous people with disabilities (Lockwood 146).

Issues[edit]

People with physical disabilities[edit]

Access to public areas such as city streets, public buildings, and restrooms are some of the more visible changes brought about in recent decades to remove physical barriers. A noticeable change in some parts of the world is the installation of elevators, automatic doors, wide doors and corridors, transit lifts, wheelchair ramps, curb cuts, and the elimination of unnecessary steps where ramps and elevators are not available, allowing people in wheelchairs and with other mobility disabilities to use public sidewalks and public transit more easily and safely.

Exhibitions and collections[edit]

To mark the 10th anniversary of the Americans with Disabilities Act, the Smithsonian Institution National Museum of American History opened an exhibition that examined the history of activism by people with disabilities, their friends, and families to secure the civil rights guaranteed to all Americans. Objects on view included the pen President George H. W. Bush used to sign the Act and one of the first ultralight wheelchairs. The exhibition was designed for maximum accessibility. Web-based kiosks - prototypes for a version that will eventually be available to museums and other cultural institutions - provided alternate formats to experience the exhibition. The exhibition was open from July 6, 2000, to July 23, 2001.[45]

Debates and approaches[edit]

A key debate in the disability rights movement is between affirmative action for persons with disabilities versus fighting for equitable treatment. According to a 1992 polling organization, many fear that integrating people with disabilities into the workplace may affect their company image, or it may result in decreased productivity.[46] This coincides with the 1992 parliamentary review of the Employment Equity Act, which stated that employers should look to implement equity without having an official quota system.[47] This remains an ongoing debate.


An additional debate is between institutionalizing persons with disabilities versus supporting them in their homes. In 1963 during John F. Kennedy's presidency, he transformed the national view of mental health by boosting funding for community-based programs and drafting legislation for mental health care. He also created the President's Panel on Mental Retardation, which created recommendations for new programs that governments can implement on a state level, therefore moving away from "custodial institutions".[48] This shift away from institutionalization has generated a long-lasting stigma against mental health institutions, which is why in politics there is often not enough funding for this concept.


According to the US Supreme Court case Humphrey v. Cady, civil commitment laws and eligibility for intervention exist only in the instance when the person is ruled an immediate danger to themself or others.[49] The difficulty of proving "immediate danger" has led to the unexpected outcome that it is harder to commit mentally ill patients to hospital and easier to send them to prison. According to the National Alliance on Mental Illness, about 15% male inmates and 30% female inmates have some kind of serious mental illness which remains untreated.[50]


Another ongoing debate is how to cultivate self-determination for persons with disabilities. The common article 1 of the International Covenant on Civil and Political Rights and the International Covenant on Economic, Social and Cultural Rights asserts that "All peoples have the right to self-determination" with free will.[51] Because this highlights the concept of free and autonomous choice, one argument is that any government interference deters self-determination,[52] thus leaving it to persons with disabilities to seek out any help they need from charities and nonprofit organizations. Charitable organizations such as churches believe in helping persons with disabilities with nothing in return. On the other hand, another approach is a participatory, symbiotic relationship, which include methods like professional development and resource provisions. More specifically, one approach is to allow persons with disabilities to self-articulate their needs and generate their own solutions and analyses.[53][54] Instead of passive participation, which is participation by being told what to do or what has been done, this approach proposes to allow this group to be self-sufficient and make their own decisions. Barriers to this include defining who is a self-sufficient individual with a disability, circling back to the concept of self-determination.

Access Now v. Southwest Airlines

Mills vs. Board of Education of District of Columbia

Independent Living Resources

National Organization on Disability

Society for Disability Studies

site for Independent Lens on PBS

Lives Worth Living

An online exhibition from the National Museum of American History

The Disability Rights Movement

Colker, Ruth and Milani, Adam. Everyday Law for Individuals with Disabilities (Paradigm Publishers, 2005).  978-1-59451-145-5

ISBN

Fleischer, Doris Zames and Zames, Frieda. The Disability Rights Movement: From Charity to Confrontation (Temple University Press, 2nd Edition, 2011).  978-1-4399-0743-6

ISBN

Johnson, Mary and The Ragged Edge Online Community. Disability Awareness - do it right! Your all-in-one how-to guide (The Advocado Press, 2006).  978-0-9721189-1-0

ISBN

Longmore, Paul, K. and Umansky, Laurie, editors, The New Disability History: American Perspectives (New York University Press, 2001).  978-0-8147-8564-5

ISBN

. Crippled Justice: The History of Modern Disability Policy in the Workplace (University Of Chicago Press, 2001). ISBN 978-0-226-61659-9

O'Brien, Ruth

Pelka, Fred. (1997). . Santa Barbara CA: ABC-CLIO. ISBN 978-0-87436-834-5

The ABC-CLIO Companion to the Disability Rights Movement

Pelka, Fred. (2012). . Amherst, Boston MA: University of Massachusetts Press. ISBN 978-1-55849-919-5

What We Have Done: An Oral History of the Disability Rights Movement

The Regents of the University of California. The Disability Rights and Independent Living Movement (Berkeley, CA: The University of California Berkeley, 2001). Web. Copyright © 2007 The Regents of the University of California. All rights reserved. Document maintained on server: by The Bancroft Library. www.bancroft.berkeley.edu/collections/drilm/aboutus/project.html Archived 2004-08-16 at the Wayback Machine

www.lib.berkeley.edu/

Shapiro, Joseph P. (1993). . New York: Times Books ISBN 978-0-8129-2412-1

No Pity: People with Disabilities Forging a New Civil Rights Movement

Stroman, Duane. (2003). . University Press of America. ISBN 978-0-7618-2480-0

The Disability Rights Movement: From Deinstitutionalization to Self-Determination

Vega, Eugenio (2022) Crónica del siglo de la peste. Pandemias, discapacidad y diseño. Madrid, Experimenta Libros.  978-84-18049-73-6

ISBN

Williamson, Bess (2019). Accessible America. A History of Disability and Design. New York University Press.  978-1-4798024-94

ISBN